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Concept
HumGen
Summary
The Centre of Genomics and Policy (previously the HumGen team) is affiliated with McGill University and the Genome Innovation Centre Canada. The Centre was launched to respond to the urgent need for informed public policy and analyses on socio-ethical issues related to human genetics research at the international, national, and provincial levels. Its website provides policy makers and the public access to policy statements concerning genetic research.
Located within the McGill Genome Centre, the Centre of Genomics and Policy (CGP) works at the crossroads of law, medicine, and public policy. Applying a multidisciplinary perspective and collaborating with national and international partners, the CGP analyzes the socio-ethical and legal norms influencing the promotion, prevention and protection of human health.
Currently, the CGP's research covers several areas of genomics and policy that include: stem cell research and therapies, personalized medicine, prevention and treatment of cancer, data sharing in research, pediatrics, genetic counselling, digital health and AI, intellectual property and open science, epigenetics, intersex and diversity in health, gene editing, genetic discrimination and biobanking (population genetics).
These domains are approached using three guiding foundations: internationalization, policy development and knowledge transfer. First, the CGP promotes internationalization by undertaking comparative analyses of policies and guidelines around the world. Secondly, the CGP actively participates in the creation of international consortia with a view to promoting multidisciplinary policymaking. Finally, via its numerous workshops and lecture series, the CGP encourages knowledge transfer.
The CGP team was formerly affiliated with the Centre de recherche en droit public (CRDP) of the Université de Montréal under the name Genetics and Society Project.
Faced with rapid advances in human genetics research, policy makers continue to struggle with a host of complex ethical, legal, and social questions.
Official source
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