Publication
Medical studies are usually time consuming, cumbersome and extremely costly to perform, and for exploratory research, their results are also difficult to predict a priori. This is particularly the case for rare diseases, for which finding enough patients is difficult and usually requires an international-scale research. In this case, the process can be even more difficult due to the heterogeneity of data-protection regulations, making the data sharing process particularly hard.
Boi Faltings, Aleksei Triastcyn, Sankarshan Damle, Sujit Prakash Gujar
Rachid Guerraoui, Martin Jaggi, Youssef Allouah, Anastasiia Koloskova, Aymane El Firdoussi